
http://www.oncolink.org/
A good starting place for information and resources for coping with cancer.
http://www.acor.org/
This is a website that includes family support resources and links as well as information about childhood cancer.
http://groups.yahoo.com/
This website sponsors many listservs. Some of the ones families of children with cancer include:
AML; Glioma; Osteosarcome; Ewing's Sarcoma
Medulloblastoma - Welcome to the Medulloblastoma & PNET list. This list is for parents, patients, relatives, friends, and health professional for discussion and support pertaining to Medulloblastoma and PNET brain tumors.
Neuroblastoma - This is a list for parents whose child has been diagnosed with neuroblastoma. I can serve as support, as well as a place to share stories and gather information.
BMT_ALL - For parents of children with Acute Lymphoblastic Leukemia who are about to go through or who have gone through a bone marrow transplant.
http://www.patientcenters.com/
This website has specific information about Childhood Leukemia and about Childhood Cancer. It gives information about resources and medical information.
http://www.cancer.org/
The website of the American Cancer Society
http://www.leukemia.org/
The website of the Leukemia Society of America
http://www.candlelighters.org/
Founded in 1970, Candlelighters has more than 40,000 members worldwide. Some of the free services provided by Candlelighters are a yearly bibliography and resource guide, quarterly newsletter, youth newsletter, and various handbooks to help families of children with cancer.
http://www.nci.nih.gov/
Provides a nationwide telephone service for people with cancer, their families and friends, and the professionals who treat them. The NCI answers questions and sends out informational booklets on a variety of cancer-related topics. CANCERFAX provides treatment guidelines, with surrent data on prognosis, staging, and histologic classifications. To use CANCERFAX you need a fax machine with a telephone set to touch-tone dialing. A recording will give you instructions.
http://www.curesearch.org/
Supports pediatric cancer treatment and research in more than 115 hospitals in North America and Australia. Their newsletter, Childhood Cancerline, provides information on new treatments and psychosocial support.
http://www.canceradvocacy.org/
An organization that addresses the needs of long-term cancer survivors and advocates for change in healthcare to maximize survivor's access to optimal treatment and support. Extensive publications list.
http://cancernet.nci.nih.gov/
PDQ is the National Cancer Institute's computerized listing of accurate and up-to-date information for patients and health professionals about cancer treatments, research studies and clinical trials.
http://www.children-cancer.com/
National Children's Cancer Society - Helps children affected by childhood cancer and their families by providing financial assistance, advocacy, education, and emotional support.
http://www.bmtnews.org/
Additional resources for bone marrow or stem cell transplant families are listed here.
http://www.wish.org/
Make-A-Wish Foundation of America
http://www.squirreltales.com/
This sites' charter is to provide practical tips and encouragement and information regarding both to parents of children with cancer.
http://www.caringbridge.com/
This site allows you to create a website for your child to keep friends and family informed of his or her progress. You can set up a password with it so that only those to whom you give it can access the site.
http://www.theartsforlife.org/
Arts For Life is a nonprofit organization that gives young cancer patients at Brenner Children's Hospital tools they can use to approach their illness in positive ways.
BRAIN TUMOR SITES
http://www.abta.org/
American Brain Tumor Association - Provides resources such as books and websites on subjects related to brain tumors.
http://www.cbtf.org/
Children's Brain Tumor Foundation - Publishes a resource guide in English and Spanish; has a Parent-to-Parent network to provide support of families from someone who has had similar experiences; has a newsletter and other services.
(See also the onelist above)
LINK FOR TEENS
http://www.teenslivingwithcancer.org/
A website for teens who want to learn more about their disease, connect with other teens, help their family get a grip, and start feeling more in control. Created by the Children's Oncology Group.